Although there is anecdotal evidence from MM patients and their oncologists suggesting that many patients face challenges with accessing care, very little has been done to quantify these access issues. To address this lack of information, The Leukemia and Lymphoma Society (LLS) and Avalere Health are launching the first ever survey of the barriers MM patients face when trying to receive care. Barriers to care might include:

  • Problems finding an oncologist that is knowledgeable about myeloma
  • Issues related to transportation to and from appointments
  • Concerns with the cost of treatment and insurance coverage

This type of research is important so we may better understand the specific barriers that affect MM patients and to develop policy options that can better address these barriers.


Questions? Please contact Sara Rubin at srubin@avalerehealth.net or at 202-459-6242.


If you need myeloma information or support services please contact the LLS Information Resource Center at 800-955-4572 or online at www.LLS.org.

If you have multiple myeloma and are interested in participating, please complete the following information:


Name:

Email*:


Your responses will remain anonymous and confidential. We really appreciate your interest in being a part of this groundbreaking study and will plan to share the results with all the survey participants. We encourage you to forward this link to other interested MM patients.

*Please note that your email will not be shared with any outside parties. Email addresses will only be used to send you a link to the survey.